SHHH in Kentucky

Newsletter - Winter 2000


What's happening around the state

From the Capitol City Group

Lori Bishop reports: "We had a meeting in November The patient representative (social worker) from the local hospital came and talked to the group about what a hard of hearing person needs to do or know about going into the hospital and requesting communication accessibility. That turned out to be a pretty good meeting. The local paper did a write-up about our local SHHH and Jayne McRae and I were interviewed. We were on the front page of the "Spectrum" part of the Sunday paper."

From the Bluegrass

Group we have the distressing news that Peg Teachey is stepping down as president "due to increasing workload and family/church obligations". She is still very much a member of the group, however, and hopes a new leader will be found soon. The group's Advisor is Pattie Edwards, who is a Rehab Counselor in Danville. Their January meeting was canceled due to various winter related problems, but the next meeting on Monday, Feb. 28th will feature the new KY State CO-Coordinator Paula Esterle, as speaker!

From Northern Kentucky,

where we no longer have an official group, but a lot of wonderful people, we do have some news from Betty Timon. "Northern Kentucky is gearing up for the DeaFestival in Covington Convention Center on May 28th. We are hoping to have some things planned for the weekend so people can visit, possibly an art show and a boat ride. People on this end of N KY and Cincinnati are very excited about this upcoming event. I hope to be able to see the start of a social gathering of hard of hearing people who go out to eat and go to the movies. Maybe this can take place in the spring.

"The Cincinnati Inquirer ran a story about Betty taking her granddaughters to a captioned showing of Toy Story 2 in Covington. It told about what a nice change it is to be able to go to a movie and enjoy it like everyone else! This was a good advertisement for a service from Tripod Captioned Films. (Locally these show at National Amusements theaters.)

Betty is also involved with the DEPT. OF AGING & MENTAL HEALTH Coalition that needs input from us--- especially for senior citizens who are deaf or hard of hearing. Betty is working for nursing home access with the Dept. on Aging and the Nursing Home Association.

The Derbytown Chapter

had a fascinating meeting in January. They invited two police officers, one each from the Indiana and Kentucky State Police. They told us how they train officers for awareness of the needs of deaf and hard of hearing people and what we can do to help them help us. Many of us had questions about what to do when stopped by an officer on the road. We were told to explain immediately that we have a hearing loss and tell the officer how to communicate with us. We were warned NOT to start digging around the car for a notepad, as officers are also trained to be perceptive about suspicious movements - for their own safety. They also discussed methods of calling into a police station for help or dialing 911.

In December, we had a holiday party at Ann Rosenbaum's apartment complex - just as we do every year! This one was especially well-attended. We were pleased to have Laura Kogut and her family present too. Laura is our CART provider for meetings. (CART= computer assisted real time captions)Our president, Louise Wisdom, recently had the initial surgery for a cochlear implant and is patiently awaiting the connection to her processor. We are all just as excited about it as she is!

And of course Paula Esterle has been named KY CO-Coordinator for the state. Mary Lee is overjoyed to have someone help reach out across the state!

Derbytown continues its two other activities: a monthly dinner at a local restaurant (4th Tuesday), and a weekly Sign language practice session on Monday nights. This had started with a summer class taught by Dr. Carol Holm. Now Bob Stuckey and Robert Deddens have been helping with the practice sessions.

Several other areas around the state have expressed interest in starting a group. If you live in or near Bowling Green or Hopkinsville, you should contact your state co-coordinator for information - - there is hope!


Do you really want to keep those TV captions?
The Individuals with Disabilities Education Act (IDEA) mandates that after September 30, 2001, the Dept. of Education will only fund captioning for educational, news and informational television, videos, or materials. The term "education" is under discussion here. (Keep in mind that funding for captioning also comes from many other sources and none can be taken away that already exists)

If you agree that captioning is vital and should be funded at all levels and for all kinds of programming, you can voice your thoughts via e-mail to and include the phrase "educational media activities" in the subject line of your electronic message. Or phone 202 205-8083 V or 205-8102 FAX your comments.

The FCC has mandated a longer phase-in period for 100% captioning. Meanwhile, if the Dept. of Education does cut back on it next year, we stand to lose a lot of shows we depend on.

As a teacher, your editor has protested this change as endangering the education of a group of children who have just finally been able to have the same access to the language that others do. While we all lament the content of TV and question the appropriateness of many shows for our children, there is a language acquisition benefit to watching captions - - with parental supervision of content! In this light it might even be difficult for the Dept. of Education to define what is educational and what is not.

Make your voice heard on this subject now - - don't wait until you suddenly discover a previously captioned show to be now "silent".


Weather Captions!
Has everyone discovered that the Weather Channel is captioned for a part of their viewing day? Early morning and prime time evening hours are captioned now. It would be nice to send them a thank you! (http://www.weather.com) -So they will expand it to all day soon!
Paula's Corner
Hey folks, I think I just became an activist.

Attending the Leadership Training Seminar in Bethesda, Maryland was an opportunity to focus on ways we achieve our goal of improving the quality of life for hard of hearing people. On October 1-3, approximately 40 participants convened from across the US to the Bethesda Ramada that was two blocks from the national office of SHHH. The conference was underwritten by a generous grant from the AT&T Corporation. Its purpose was to unify and inform the far-flung chapters of SHHH in order to strengthen the organization.

I was proud to be attending as a member of the Derbytown Chapter. We were hosted, inspired, and entertained (and served dinner!) by an enthusiastic group from the national office including Marilyn Finn, Brenda Battat, and Barbara Thomas. We were even addressed by the founder of SHHH, Rocky Stone. Beth Wilson, a "graduate" of the previous course gave an inspiring talk on the humorous aspects of training hearing people to accommodate us. The weekend was filled with practical solutions to the difficulties we face in achieving our goals. It was far from being boring and dry, as is this synopsis. There was a bit of time to socialize and sightsee in nearby Washington D.C.

The proof of the forum's effectiveness will be in the future results. Toward this end, great action plans were developed and signed in blood. Well, they were taken seriously. If additional funding can be acquired, there is hope of offering additional training sessions during the upcoming year. Okay, who would like to apply for the next session?

Actually seeing the national headquarters was interesting. Many factors that enhance the quality of life for persons who are hard of hearing are addressed in a policy-making forum. I have learned that while it can be empowering to help myself, some issues such as access to employment opportunities, education, communication, health care, and entertainment require a unified voice from the national office. That voice is kept strong by national membership in SHHH. I admit that I belong for purely selfish reasons. They are looking out for my interests. I rely on them as a strong source of advocacy. It falls to them to share information to prevent the reinvention of the wheel.

In addition to the many good ideas exchanged, there were other attendees who were personally at the technological frontier. A participant from the northwest had just received the latest model of cochlear implant from the Advanced Bionics Corporation. His understanding of speech seemed remarkable. Read more on his type of Clarion device at .

An attendee from Michigan had a bulletin board to serve the group the Monday after our return. Now, we can quickly post questions or information that will be dispersed to other chapters across the country. They are a source of information we can directly access.

A leader described the meetings that her board conducts online. During these cyber-meetings everyone meets in a chat room at a given time and decisions are discussed and even voted on. This is allows better communication when members are geographically separated. The most intriguing possibilities for our chapter, in my opinion, lie in the area of creating alliances with more community groups than we do at the present. In other chapters, partnerships have been formed with diverse groups such as the Lions Clubs, Kiwanis, and the public library. These organizations could provide financial support as well as community visibility.

As I listened to the struggles of those living in areas without an established group, I was grateful for the years of work and support given from our membership. While some chapters are hundreds strong and have access to resources such as mobile labs for testing ALD's and university programs, I was proud to be from a small but strong chapter. I doubt any can rival the dedication and caring bonds present in the Derbytown Chapter.


What's all this about May 6th???
SHHH is determined to eradicate the stigma of admitting a hearing problem. People with hearing loss wait an average of seven years before seeking help and 75 percent of people who could benefit from hearing aids are not using them. By age 65, one out of three people has a hearing loss and 30 out of every 1,000 school-age children have a hearing loss.

On May 6, 2000, during Better Speech and Hearing Month, people can receive free hearing screenings in selected communities throughout the United States. Sites will be announced by March 31, 2000 and posted by state on the SHHH website, www.shhh.org. This will be an annual event.

Retired Surgeon General C. Everett Koop, MD Sc.D., is the spokesperson for the National Day of Hearing Testing. Collaborators of the National Day of Hearing Testing include: AARP; Academy of Dispensing Audiologists; American Academy of Audiology; American Academy of Otolaryngology-Head and Neck Surgery, Inc.; American Speech-Language-Hearing Association; EMM Creative; and the National Institute on Deafness and Other Communication Disorders, National Institutes of Health. Event Sponsors are: Hearing Industries Association; Phonak; and Starkey Laboratories Inc. SHHH is determined to eradicate the stigma.

What can you do to help? 1. If you are a member of a local chapter or group, discuss this at your next meeting and volunteer to contact an audiologist or hearing aid dispenser to ask their cooperation. 2. Volunteer to help on May 6 with the screenings. We will need SHHHers to be present as each screening site.
3. If there is no group or chapter near you, contact one of your state CO-Coordinators for assistance and information. You can have a testing site in your are also! In fact, you should. The result might be a new group forming! of admitting a hearing problm.


Captioned Movies!
Three captioned movies are scheduled in our area during the next month. Cincinnati will have the Green Mile on Feb. 22-23, and The Man on the Moon on Mar 7 - 8. Louisville will see the Man on the Moon Feb. 1 - 2.

These are all showing at National Amusements theaters - check your local newspaper showclock for times.

No showings in Lexington or Bowling Green or Hopkinsville? Nothing in Owensboro? How terrible!!! And do you know WHY there are no showings in these cities? BECAUSE YOU DID NOT ASK FOR THEM.

All you have to do is ask Tripod (818) 972-2080 or to please send captioned movies to your area. They will want to know what theaters are in your area, and who will be a contact person in that area. (So they can send you flyers for advertising!)


Meeting Notice:
The Kentucky Advisory Board (KAB) will meet on Feb. 25th at The Best Western in Frankfurt. (Route 60W and I64 at Exit 58). The board meeting will begin at 10 AM, and have a Hamilton Relay Workshop from 1:30 to 3:30. This workshop is for the board itself. However there will be concurrent workshop held by Hamilton for the public, in the same location. They will have relay demonstrations, equipment distribution information, relay call handling, relay customer profile, and much more! Please contact Bob Stuckey at 502-897-9500 or Amy Watson at 888-662-2406 for more information.

The KAB is the Advisory Board for the KY Relay Service administered by the Public Service Commission (PSC). It is comprised of various deaf, hard of hearing, and severely hard of hearing consumers as well as a member of the PSC and representatives from the relay provider.

New Gadget from the TTD Distribution Program!! The TDD Distribution Program Advisory Board met on December 3, 1999 to review and approve new equipment to be offered through the TDD Distribution Program. Because so many new products have been introduced since the program first began, Outreach Specialist Drew Weldon thought we should review the equipment that is offered, delete any that is outdated, and add new equipment that meets a wider range of needs. Fans of the Ultratec Uniphone need not worry; that good, family-friendly combination of TDD, VCO phone, and amplified telephone will still be offered. One of the new offerings will be the Ultratec Superprint Pro 80 with a full-size computer keyboard, an 80-column printer that uses standard-size paper, and built-in caller ID.

Several traditional TDDs and amplified telephones (including a cordless amplified phone) will be offered, but they will have more features than earlier models.

Members of Derbytown SHHH were very excited by the Krown Pocket Speak and Read VCO that two members brought and demonstrated for us at our Christmas party in December. This device, which can be carried in your pocket and attached to any phone, will be offered through the TDD Distribution Program. Please be aware, however, that you cannot choose this device AND a traditional TDD, VCO phone, or amplified phone. You can choose only one. However, if mobility is your prime consideration, you may want to choose the Krown Pocket Speak and Read VCO.

The new offerings may be available as early as next month. If you haven't already received equipment through the TDD Distribution Program and you want to see the new offerings, contact Drew Weldon at the Kentucky Commission on the Deaf and Hard of Hearing. His phone number is (502) 573-1400 or E-mail him at dweldon@mail.state.ky.us. If you prefer to write, the address is 632 Versailles Rd., Frankfort KY 40601. He will send you a brochure of the available equipment and an application form.
-Melanie Magruder

Note from Editor- The new Speak and Read VCO is a nice new toy! Judy Rogers and I each bought one in December I have used mine many times and found it to be the easiest, most comfortable way for a HOH person to use any phone, anywhere. All you need to know is the Relay number in the state. It fits in your purse or pocket - about the size of a pack of cigarettes. Check out the Krown website for a picture and information http://www.krowntty.com/index.html


Coping Tips - Try This!

The Dreaded Speakerphone

One sure way to add stress to a phone call is to have the other party pick up on a speakerphone. Hands-free systems are a convenience that is sometimes abused. Don`t be afraid to be aggressive in demanding that they pick up the phone so that you can understand them. They were probably just sorting paper clips anyway.

Sometimes it is unavoidable, but one trick I have found that helps me is insisting that the people on the speakerphone identify themselves when they are taking a turn. It is not that difficult and it forces hearing people to be more obvious taking turns. I have made this a condition for all teleconferences and it only took one time for them to get used to "Phil speaking, I think that is a great idea… Grant speaking, we might also have to look at…"
- Beth Wilson

Instead of "hello" try "this is …"

How many of you have been someplace, perhaps at work, when the phone rang. Someone else picks up the phone (I never volunteer to answer that thing!) and hands it over saying that the call is for you. You pick up the phone and say "hello" and the mystery person on the other end launches into their tales of woe. You have no idea who it is or what they are talking about.

In my current assignment I get many calls in the lab (read that "noisy environment"). I found that things were much easier when I answered the phone "this is Beth…" If there is a lot of noise in the background I take the phone and say "This is Beth, who have I got?" Now they always stop to say who it is and I have a frame of reference for what they are trying to tell me.
- Beth Wilson
[First appeared in RI Sargent Chapter SHHH newsletter February1999.]